Archive for February, 2010

Updates sent to Twitter, February 2010

Updates related to OA, sent to Twitter during February 2010:

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Panton Principles for Open Data

Launch of the Panton Principles for Open Data in Science and ‘Is It Open Data?’ Web Service, Jonathan Gray, Open Knowledge Foundation Blog, February 19, 2010 [Connotea bookmark][Topsy search results][Panton Principles][Is It Open Data?].

A commentary: Panton Principles for Open Data in Science, Bill Hooker, Open Reading Frame, February 19, 2010 [FriendFeed entry].

The Principles:

  • When publishing data make an explicit and robust statement of your wishes [with respect to re-use and re-purposing of individual data elements, the whole data collection, and subsets of the collection].
  • Use a recognized waiver or license that is appropriate for data [many widely recognized licenses are not appropriate].
  • If you want your data to be effectively used and added to by others it should be open as defined by the Open Knowledge/Data Definition – in particular non-commercial and other restrictive clauses should not be used.
  • Explicit dedication of data underlying published science into the public domain via PDDL or CCZero is strongly recommended and ensures compliance with both the Science Commons Protocol for Implementing Open Access Data and the Open Knowledge/Data Definition.

Some background information about the origin of these Principles (at the Panton Arms, Cambridge): The Panton Principles: A breakthrough on data licensing for public science? Peter Murray-Rust, petermr’s blog, May 16th, 2009, and: A breakthrough on data licensing for public science? Cameron Neylon, Science in the Open, May 15, 2009.

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Guidance re data sharing and patient privacy

New guidance on data sharing will minimize risks to patient privacy, EurekAlert, January 28, 2010.

And: BMJ policy on data sharing, Trish Groves, BMJ 2010(Jan 28); 340: c564 (Editorial; only the first 150 words are publicly accessible).

See also: How to publish raw clinical data: guidelines from Trials and the BMJ, Matthew Cockerill, BioMed Central Blog, January 29, 2010.

About this article: Preparing raw clinical data for publication: guidance for journal editors, authors, and peer reviewers by Iain Hrynaszkiewicz, Melissa L Norton, Andrew J Vickers, Douglas G Altman, Trials 2010(Jan 29); 11(1): 9 [Epub ahead of print][Connotea bookmark][PubMedCitation].

This article has been co-published: BMJ 2010(Jan 28); 340: c181 [PubMed Citation]. Summary points:

Despite journal and funder policies requiring data sharing, there has been little practical guidance on how data should be shared

Confidentiality and anonymity are key considerations when publishing or sharing data relating to individuals, and this article provides practical advice on data sharing while minimising risks to patient privacy

Consent for publication of appropriately anonymised raw data should ideally be sought from participants in clinical research

Direct identifiers such as patients’ names should be removed from datasets; datasets that contain three or more indirect identifiers, such as age or sex, should be reviewed by an independent researcher or ethics committee before being submitted for publication

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